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Paediatric epilepsy service

What we do

The paediatric epilepsy nursing (PEN) service supports effective diagnosis and care of children/young people with a diagnosis of epilepsy, avoiding unnecessary hospital admissions/attendances, from birth to transition to adult services.  The paediatric epilepsy nursing service is provided to children/young people who have an NHS Luton GP.

Referrals are accepted from community/hospital paediatricians, health professionals, education, social services staff. Re-referrals are accepted directly from parents/carers/young people who have previously accessed the service. 

Click on the links below to play videos relating to our epilepsy service:
Epilepsy Transition (1)  
Epilepsy Transition (2) 
How to deal with a first seizure

How to contact our service

The Paediatric Epilepsy Nursing Service provides full time service Mon-Fri 09:00- 17:00 excluding Bank holidays/33 days annual leave/year.
Tel : 0333 405 0079

Where our service is based

The Poynt
2-4 Poynters Road
Luton LU4 0LA

but services are delivered in schools, homes and community settings.

Access to Records
You, or an authorised representative, are entitled to access your health records and obtain copies. To find out more about how you can access any records we hold on your care, visit Access to Records.

Click on the link for our 'Your Data Your Rights' leaflet.


Patients Know Best (PKB)

The service is currently piloting use of an online platform called Patients Know Best, to see if it will help to improve the care you or your child receives, and whether it could reduce the likelihood of being admitted to hospital with a seizure.

If your child or young person is aged 0-18, with epilepsy, and registered with a Luton GP, we would love you to take part in this pilot project. To find out more - click here.

FileTypeSizeUploaded onDownload
0390 - Children's Epilepsy Nursing Service 1st AssessmentPDF1018.39 KB04 Nov, 2015 Download
0389 - Paed Epilepsy Nursing ServicePDF1.07 MB04 Nov, 2015 Download
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Patient Experience
"Seen very quickly. The nurse was very understanding, approachable and empathetic"  - Luton community paediatrics