Diagnosis Support Pack (DSP)Diagnosis Support Pack Logo - orange background

About the co-produced Diagnosis Support Pack

Our Diagnosis Support Pack (DSP) has been coproduced by families for families following a diagnosis of a neurodiversity.

Some families have described the experience of their child receiving a neurodiversity diagnosis (e.g. Autism or ADHD) with mixed emotions, and following the lengthy diagnosis process are left with little information, or understanding of ‘what next?’  Many families have told us that a 'one-stop shop' for information, resources and signposting following a diagnosis would be really useful, and they would like this information to be accessible and from a trusted source. 

Led by our Coproduction team, we joined together with parents, young people, local Parent Carer Forums, CAMHS, Education Psychology, and other key partners.  As well as making the pack informative and useful, it was really important to us that the pack uplifts people and celebrates neurodiversity. We know many families find receiving a diagnosis a challenging time, but empowering messages and having positive role models are so important to help parents/carers and young people on their journey.

What is the Diagnosis Support Pack?

The Diagnosis Support Pack is for families following a diagnosis of a neurodiversity, and contains information, resources and signposting in a variety of media (video's, infographics, animations), split into 14 different sections - from sleep to medication and lots more.

Click on the button links below to access the sections.


 Introduction  Positives  Holistic Approach  What to expect at your appt
 Sleep  Medication  Talking about a diagnosis  Sensory Processing Needs
 Mental Health  Supporting Social Communication  Holistic Approach  Useful Information
 Jargon Buster  Resources    


The pack is also accessible via the Bedford BoroughCentral Bedfordshire and Luton Local Offer pages.  You can find out more about the Local Offers by clicking on the links above.


Coming to our Clinics

To access our videos about what will happen when you come to the clinic for an assessment - click on the links below.

Welcome to the
Bedford Child
Development Centre


VIDEO COMING SOON

To view the short clips mentioned in the videos above, click on the links below.

Neha Makwana, Highly Specialist Speech and Language Therapist
https://vimeo.com/582028221/f09cf59c24

Louise Barrett, Clinical Nurse Specialist
https://vimeo.com/582028085/72f959d680


 

Latest Waiting Time information

Click on the link to view information regarding our latest waiting times across Luton and Bedfordshire

Click on this link for translatable information on waiting times.


Podcast

In this podcast (produced by CAMHS) we discuss how, why and what the Diagnosis Support Pack is all about and the journey that went in to its creation.


 

How to use the Diagnosis Support Pack

ReciteMe GRAPHIC

  • All the pages in this pack can be translated into your native language as text or audio via our Recite feature which you will find at the top of each page.  The translated page can also be downloaded.  More information about using our translation service can be found by clicking here.

  • Click into each chapter and read through in your own time and at your own pace.

  • At the bottom of each page (including this one) you will find three icons, you can click on these to take you back to our

 


What do you think of this Diagnosis Support Pack?- please let us know if there is anything we can improve on or if you have any suggestions for content by clicking on this link


 A jargon buster of commonly used words, phases or acronyms can be found by clicking on this button:  Links to help and support from other organisations can be found by clicking on this button:

The information on this page forms part of the Diagnosis Support Pack. To go back to the main page click on this button:

 Jargon Buster icon  Help and Support Icon  Go Back Button




Latest News
Compliments and complaints
Patient Experience
"Seen very quickly. The nurse was very understanding, approachable and empathetic"  - Luton community paediatrics