Bedfordshire & Luton Community Paediatrics Services
The service provides assessment, advice, signposting, diagnosis and support for children and young people.
How long is the wait to first appointment?
What is the cause of the delay?
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Waits are so long at the moment because we are having a lot more people referred to us – the number of people coming to us is now twice what it was three years ago.
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Waiting lists also increased during COVID where we couldn’t carry out face-to-face assessments.
What is the service doing to help?
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New specialist nurses have been successfully recruited to improve the frequency of medication reviews.
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An early intervention team has been formed to support children and families. The team have coproduced an ‘Early Support Workshop’ with parent carer forums.
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The specialist nursing team are available by telephone or email daily to offer support and advice to families. They can be contacted via our Health HUB - available Monday to Friday. See details for how to contact below.
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Waiting time information has been added to letters and community resources including where to seek support locally.
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The Neurodiversity Diagnosis Support Pack and many other resources to support communication,
continence and sensory challenges have been co-produced with parent carer forums and are available on our website - see details below.
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Families who have been waiting longer than anticipated have been contacted by our team to ensure support is offered.
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The service meets monthly with Parent Carer Forums to listen to feedback and share updates.
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'SEND Health focus week; a week of free, interesting and informative workshops and webinars, has been co-produced with Parent Carer Forums for the 9th - 16th June 2023. For more information and to book your place please visit here.
Where can I go for help in the meantime?
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Diagnosis Support Pack For families following a diagnosis of a neurodiversity, and contains information, resources and signposting in a variety of media.
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Post Diagnosis Pack Resources Section Please see our online page, which includes details of local support services.
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Our workshops page has plenty of training you can access any time, for free.
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For advice and support call our Children's Community Health HUB on 0300 555 0606 or email ccs.bedsandlutonchildrenshealthhub@nhs.net - this is available from 9am - 5pm Mon –Fri.
For Bedfordshire, you can contact the CDC by emailing: ccs.beds.childrens.cdc.admin@nhs.net or contact Union Street by emailing: ccs.paediatricadminteam-unionstreet@nhs.net
For Luton, you can contact the Edwin Lobo Centre by emailing: edwinlobocomms.s1@nhs.net