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How to be prepared

  • Provide information about appointments in advance …. I like knowing what’s going to happen, where I am going and who I am seeing. Video’s and pictures are best.
  • Be reliable and on time.
  • Think about the space I need before I arrive! …Make space for my wheelchair. It feels awkward to wait while you move the room around. Sometimes my wheelchair blocks gangways and I keep getting asked to move - sometimes I end up facing walls/corners. I feel like I’m in the way.
  • Please read about me before the appointment. It means the meeting won’t have to be so long and I don’t have to repeat myself.
  • We don't like the phrase “What’s the problem?”, especially when you’ve asked to see me.
  • Be flexible around appointment times where coming a long distance …If we have to travel long distances to appointments, try not to book us really early, please don’t tell us off if we’re late. Some things can make journeys take longer, and there can be problems along the way (e.g. broken lifts, not finding accessible bathrooms, seizures, etc.) 

Family arriving at clinic for appointment

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How to use the Neurodiversity Support Pack

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All the pages in this pack can be translated into your native language as text or audio via our Recite feature which you will find at the top of each page.  The translated page can also be downloaded.  More information about using our translation service can be found by clicking here.


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"Seen very quickly. The nurse was very understanding, approachable and empathetic"  - Luton community paediatrics