Sharing Results

We aim to be able to share the results of research studies with those who have taken part. It is important to bear in mind that some studies can take years to conclude and produce results.

The University of Cambridge NHS/HSC Health Data Consent Survey, open from February to September 2020, was asking how you think health data should be shared and used. More than 29,000 people from across the UK responded this survey, with 135 contributions from CCS. Thank you to everyone who took part, the overall results of the study have now been shared - see Results of the Climb NHS Data survey

Visit www.climbproject.org.uk for more information and where further analysis of the results will be made available soon.

CCS Luton Adults Tissue Viability service supported the delivery of this NIHR funded randomised control trial in 2011 - 2012, contributing 6 patients into the participant group. 

Conclusions: Trial data from VenUS IV found no evidence of a difference in venous ulcer healing between HH and the 4LB. HH may reduce ulcer recurrence rates compared with the 4LB and be a cost-effective treatment. When all available high-compression treatments were considered, the 2LB had the highest probability of being clinically effective and cost-effective. However, the underpinning evidence was sparse and more research is needed. Further research should thus focus on establishing, in a high-quality trial, the effectiveness of this compression system in particular.

Read publication here for full interesting findings found from this study (RL Ashby · 2014)

591 staff, family, friends, and public at CCS took part in Phase 3 of the Psychological Impact of Covid-19 survey (August – October 2021). This helped to make a huge contribution to research about the impact of lockdowns and restrictions on mental health. Below are some links to findings published from this workstream of studies:

World journal of psychiatry

‘The differential impact of lockdown and relaxation on the mental health of population sub-groups is evident in this study with future implications for policy. Introduction of face covering in public places had a stronger positive association with mental health than lockdown relaxation.’

Journal of Affective Disorders: Psychological impact of COVID-19 pandemic: Protocol and results of first three weeks from an international cross-section survey - focus on health professionals (nih.gov)

‘Evidence has shown an adverse psychological impact of previous pandemics on the population, especially wellbeing of healthcare professionals. Research should focus on identifying the need, preparing services and determining the factors that enhance and build resilience.’

 

Results from Phase 1 of the study (December 2021)

https://www.wjgnet.com/2220-3206/full/v11/i12/1346.htm

http://dx.doi.org/10.5498/wjp.v11.i12.1346

AHP Research Perceptions in the NHS National survey - Publication of results BMC Health Services Research 2022

CCS Trust AHPs participated in this UK national survey in July – September 2021 by sharing their perceptions of research capacity and culture.

The results of this NIHR study have now been published (Comer et al., 2022)

https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08465-6

Results provided by Alison (WORK-PROM study Chief Investigator), and on behalf of all of the study team. CCS MSK Services supported this study in 2020. 

The aims of this study were to evaluate the psychometric properties of measures of presenteeism, and contextual factors affecting presenteeism, for people with rheumatoid arthritis (RA), osteoarthritis (OA), axial spondyloarthritis (axSpA) or fibromyalgia (FM), for use in clinical practice and research.  To this end, we completed the data collection in 2020 – and have now analysed, published and have made freely available the seven measures tested. The measures are in the supplementary materials for the articles and also will be available for download shortly at my University of Salford website address: https://salford-repository.worktribe.com/person/1159958/alison-hammond

• Workplace Activities Limitations Scale
• Arthritis Work Spillover Scale – renamed as the Long Term Conditions Work Spillover Scale
• Chronic Illness Job Strain Scale - renamed as the Long Term Conditions Job Strain Scale
• Work-Health-Personal Life Perceptions Scale
• Perceived Workplace Support Scale
• Work Transitions Index
• Workplace Accommodations, Benefits, Policies and Practices Scale

In addition, as planned we tested the Rheumatoid Arthritis Work Instability Scale (RA-WIS) in fibromyalgia, finding this to be suitable for group level use (e.g. research studies) but not individual clinical use, and thus recommend a WIS specifically for FM is developed and tested in future.

We  have completed one secondary analysis study from the dataset (Brown et al, 2023) investigating the work limitations experienced by working people with these four conditions, and what factors contribute most to such limitations.

In future, we aim to complete a further secondary analysis study about work accommodations needed by working people with these four conditions.  This will likely also be submitted to Musculoskeletal Care, and will be open access if accepted.

Publications list: all are open access and can be identified at the DOIs stated , if you wish to read further.

Hammond A, Tennant A, Ching A, Parker J, Prior Y, Gignac M, Verstappen S, O’Brien R. (2023). Psychometric testing of the British-English Workplace Activity Limitations Scale in four rheumatic and musculoskeletal conditions. Rheumatology Advances in Practice. 7(1):rkad028. DOI: 10.1093/rap/rkad028

Brown T, Hammond A, Ching A, Parker J. (2023) Work limitations and associated factors in working people with rheumatoid arthritis, axial spondyloarthritis, osteoarthritis or fibromyalgia. Musculoskeletal Care 21: 827-844. DOI: 10.1002/msc.1760

Hammond A, Tennant A, Ching A, Parker J, Prior Y, Gignac M, Verstappen S, O’Brien R.

Psychometric testing of the British-English  Long Term Conditions Job Strain Scale, Arthritis Work Spillover Scale and Work – Health-Personal Life Perceptions Scale in four rheumatic and musculoskeletal conditions. Musculoskeletal Care  published online 11.5.23 DOI: 10.1002/msc.1774

Hammond A, Tennant A, Ching A, Parker J, Prior Y, Gignac M, Verstappen S, O’Brien R. Psychometric testing of the British-English Perceived Work Support Scale, Work Accommodations, Benefits, Policy and Practices Scale and Work Transitions Index in four rheumatic and musculoskeletal conditions. Musculoskeletal Care Published online first 19.8.23. DOI:10.1002/msc.1807

Hammond A, Tennant A, Brown T, Prior Y, Ching A, Parker J. Psychometric testing of the Rheumatoid Arthritis Work Instability Scale in employed people with fibromyalgia. Musculoskeletal Care DOI: 10.1002/msc.1829 (in press)

 

ELOPE-GDM study research into diabetes in pregnancy by University College London (UCL)

The CCS Research Champions and 0-19 teams were involved in sharing the opportunity for eligible mums who have gestational diabetes (diabetes in pregnancy) to take part in an interview about their experience.  

UCL held an Online Event with CCS NHS Trust to discuss the findings of the study on the 7th September and the materials and infographic are now available to share with anyone who would find them interesting and useful.

Full presentation: ELOPE dissemination event - master set of slides

Top tips infographic: https://blogs.ucl.ac.uk/elope/files/2023/09/UCL_ELOPE_TopTips_QR-12.9.23.pdf

For more information, please contact the research team on elopegdm@ucl.ac.uk or visit the ELOPE webpage

Dr Tamsin Holland Brown, Cambridgeshire Consultant Community Paediatrician, and colleagues, research project on using a wireless kit and an app as a cost effective alternative to the usual treatment of ‘glue ear’ was published in the prestigious online journal BMJ Innovations. The research received a huge amount of well-deserved national and international interest and media coverage for the very real difference it is making to children experiencing temporary hearing loss. A special thank you is made to Raspberry Pi for the donated equipment to make the project possible.

The article has been featured in various newspapers including The Daily Mail, The Independent  and RCPCH.

See also: Glue ear headphones win parents’ praise. Researchers have given two Cambridge health trusts the thumbs up to an innovative device to help children with glue ear. https://www.cuh.nhs.uk/news/glue-ear-headphones-win-parents-praise/

 

Urgent need for digital health education as part of medical school curriculum, particularly since the increased health app use during the COVID-19 pandemic - See full attachment below

Dr Tamsin Holland Brown, MBBS MRCPCH PGCME BEM Cambridgeshire Community Services NHS Trust, Cambridge, CB1 3DF.

Email: tamsin.brown1@nhs.net

Twitter handle:  @hearglueear

Congratulations to Sharon Duneclift Head of Locality Norwich City & South Norfolk, Norfolk & Waveney Children and Young Peoples Service who is co-author on this paper now published on BMJ open!

Access here: BabyBreathe trial: protocol for a randomised controlled trial of a complex intervention to prevent postpartum return to smoking

This paper presents the protocol for Babybreathe which is a randomised controlled trial of a complex intervention to prevent postpartum return to smoking. The Babybreathe trial has been delivered by practitioners across the Healthy Child Programme in Norfolk since July 2021. Sharon is a co-investigator for the trial and the Principal Investigator for CCS. The study is led by Dr Caitlin Notely at the University of East Anglia and has recently reached its national recruitment target of 880 new mums who have recently given up smoking. Congratulations to all involved. Results are expected to be published in late 2024 or 2025. 

More information about the study can be found here: https://www.uea.ac.uk/groups-and-centres/addiction-research-group/babybreathe