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Children with complex needs who have epilepsy should continue with their current treatment plan. Seizure care plans should be followed as usual.

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What can you do to help?

Consider at this difficult time that it may take a few days longer to get hold of medication so please request repeat prescriptions early to avoid having any gap in medication.

Who can help?


If you’re worried about your child, our team will be able to offer advice and support. You can Call Us on 0300 029 50 50 **Monday to Friday 8.30am - 4.30pm excluding bank holidays** ask to speak to the community paediatricians.

Alternatively you can contact special epilepsy nurse at your local hospital using details below:

  • Central Cambridgeshire families can contact the Epilepsy Specialist Nurse, Janet Hill on: 01223 216805 or Zoya Dowd on: 01223 586618. To upload videos of seizures/events please use:
  • The Epilepsy Specialist Nurse at Hinchingbrooke Hospital, is Nicki Astle who can be contacted via email: nicki.astle@nhs.netThe email for uploading videos is:
  • If you need to contact the Children's epilepsy nursing service at Addenbrooke's Hospital call: 01223 216662 or Epilepsy Action 0808 800 5050.
  • If you need to contact the Children's epilepsy nurse at Queen Elizabeth Hospital Kings Lynn, please get in touch with Dr Nair or Dr Wong via secretaries (01553 613882 –Val Shelley or via switchboard 01553 613613).
  • The Epilepsy Specialist Nurse at  Peterborough Hospital is Martin Smith who can be contacted on 01733 677145 during normal working hours. If Martin not available, phone gets transferred to Paediatric secretaries (where a message can be left). Secretary will pass on query to Martin or to on-call consultant.
  • If you have any questions regarding the ketogenic diet, you could also contact Matthews Friends 01342 836571

If it is life threatening, call 999 for an ambulance.

Urgent care will still be delivered by your local hospital if needed. If you do go to the hospital, please remember to take either your healthcare passport or your latest clinic letter from the community paediatricians.

For children with very complex health care needs we recommend parents to keep a short video recording of when the children are well, this is useful for clinicians to know how they normally act.

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