Update on the actions we are taking to reduce waiting times in Community Paediatric Services at the Edwin Lobo Centre

We recently updated all service users and stakeholders in a letter dated 15 May 2018 that we are struggling with increased demand. This is resulting in longer than expected waiting times for our Neuro-disability Community Paediatric Service (the Edwin Lobo Centre), which covers Luton and South Bedfordshire. We recognise that this letter may have caused you some distress and apologise for any upset this may have caused. Please be assured that things have moved on significantly since that correspondence.

We are pleased to be able to update everyone on the actions being taken to improve waiting times.

We have now secured additional funding to improve capacity within the service in the short term whilst the longer term, sustainable solution is developed. This funding will be used to increase our clinical resources. We are delighted to have been able to recruit additional Specialist Nurses and we are in the process of recruiting other resources including Speech and Language Therapy.

We are continuing to work with all partners including the two parent carer forums (SNAP and LPCF) to find ways of providing an improved service. This partnership approach is enabling us to plan increased support and services for children and families with our local authority partners and the voluntary sector.

Please be assured that the service remains open.

We are reviewing the clinical needs of every child or young person referred and prioritising appointments for children with urgent clinical priorities which include:

  • Initial Health Assessments for Looked After Children.
  • Medical priority reviews including reviews for children with ADHD who are on medication.
  • The provision of medical advice for inclusion in education, health and care plans for children with special educational needs and disabilities (SEND).

Children who do not meet the above criteria have been placed on a waiting list and will be seen as soon as possible. We are not currently able to give a definitive waiting time for individual children as this will be informed by clinical priorities and the different needs of each child. However, I am pleased to confirm that we began to see children who require multi-disciplinary assessments from 7 August 2018.

Our clinicians are passionate about providing the best care to every child referred to our service. We recognise that extended waiting times cause great stress for families and we apologise for this again. Please do revisit this page as we will keep it up to date with the latest information.

I hope the above provides you with some reassurance that we are working hard to improve the situation in the short term and develop a sustainable, long term solution with our commissioners.

In the interim, you may also be interested to know that there are a range of services available locally to support children, young people and families should you be contacted by a concerned parent. Further information on these services is available at:

Luton Borough Council Local Offer & Early Help:                

Central Bedfordshire Council Local Offer & Early Help  

Tina Charlton
Service Lead for Luton Children and Young People Services
19 September 2018

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